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Does Everybody With ME CFS Have Mold ? No, Only 90-92%.

This article is not intended to be medical or healthcare advice. Before starting on any health or medical related regimen, seek the advice of your Primary Care Physician, or an M.D.

The title says it all eh ? I came across the article in one of my many musings through pubmed. Erik Johnson has been a huge proponent that the original ME CFS outbreak back in Truckee was also coincident with a ton of mold in homes in that community and a mold infested high school. This info is available on the survivingmold website, with a focus on Stachy B.

And what do you know, a formal study of 236 ME CFS diagnosed folks, 92% had mycotoxins at levels considered elevated for at least one mycotoxin [1]. In fairness , these folks had known mold exposure - mostly in Florida. In my practice, i see similar numbers, not everybody, but its darn near close, and Long Haul is not far behind. However, in another study, 93% of 112 diagnosed ME CFS folks were positive for at least 1 mycotoxin at elevated levels. "This study was conducted to determine if selected mycotoxins could be identified in human urine from patients suffering from chronic fatigue syndrome (CFS). Patients (n = 112) with a prior diagnosis of CFS were evaluated for mold exposure and the presence of mycotoxins in their urine. Urine was tested for aflatoxins (AT), ochratoxin A (OTA) and macrocyclic trichothecenes (MT) using Enzyme Linked Immunosorbent Assays (ELISA). Urine specimens from 104 of 112 patients (93%) were positive for at least one mycotoxin (one in the equivocal range)."[2]

There appears little reason this shouldn't be a standard test for everybody that suffers from ME CFS and or Long Haul.

Thats all for now:)


  1. Prevalence of Aspergillus-Derived Mycotoxins (Ochratoxin, Aflatoxin, and Gliotoxin) and Their Distribution in the Urinalysis of ME/CFS Patients. Ting Yu Wu,1 Taura Khorramshahi. Int J Environ Res Public Health. 2022 Feb; 19(4): 2052.

  2. Detection of Mycotoxins in Patients with Chronic Fatigue Syndrome. Joseph H. Brewer,1,* Jack D. ThrasherToxins (Basel). 2013 Apr; 5(4): 605–617. Published online 2013 Apr 11. doi: 10.3390/toxins5040605. PMCID: PMC3705282. PMID: 23580077

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